2013

This year was much different. It was probably the most healing year I've experienced since Avery died. Life was relatively normal this year. Of course, it wasn't without conflict, but it wasn't fraught with profoundly earth-shattering circumstances to hurl us off course like previous years. I struggled horribly with my anxiety in the first few months and it wasn't until my writing took off that I felt some relief from that.

Possibly the most thrilling and notable detail of this year would have to be my novel. I can't stress enough how writing has saved me. I was becoming a shell of the person I'd been, so full of fear and sadness. I was constantly worrying about something, convinced that demise was certain at any moment. Writing gave me a reprieve, new thoughts to dwell on, something to be excited about. My characters became special to me and their fictional world my refuge. It might sound crazy to those who don't write, or to those who haven't experienced emotional turmoil. But this was the change I needed. 

Sure, I still have my occasional setbacks and I still have bouts of anxiety and worry, but I am no longer paralyzed by the darkness that was consuming me. My monthly doctor appointments don't grip me with fear any longer. I've learned to contain my thoughts better. 

The struggle I do still deal with is the insatiable desire for more children. As Jude gets older, it only gets worse. He is growing up alone, not even with any cousins, and I long for him to share life with someone like him. I grew up with three brothers who, to this day, remain my very best friends. It hurts that Jude won't know that bond. I find myself still holding onto hope that someday surrogacy will be possible, because that's all I have. I'm not sure what plans God has, but hope is greater than despair. 

New babies are still painful to me. Pregnant women still have me turning my head the other way. It still hurts very much and it's so difficult to be stuck in this place where everyone else around me can move along in their life while I cannot. 

I turned the big 30 this year, which I'm still in disbelief of. I don't think 30 is old, I just can't believe that I'm here already and that time has gone so quickly. Jude turned two in July and that is crazy to me as well. Didn't we just bring him home? 

We lost Bailey this year, but I was surprised to find how quickly I was able to get past it. I guess after losing my own daughter and my grandfather, the loss of a pet wasn't quite the crisis I'd imagined it would be.

Daniel left his CNA job at the health and rehab center and now works at a hospital. He's so much happier and I love that. Lately he's been caring for an elderly man in his home a few days a week and that has definitely helped us out financially. Less stress is nice! Next week, Daniel will begin nursing school to get his RN. I know that will open up so many more opportunities for him and a better life for us a family. 

I pray 2014 is gentle and kind. I pray I can continue on this better path. I look forward to watching my precious boy grow and learn. I will be finishing my book soon and will be publishing it in the coming months. I am very excited about that! 

Right where I am 2013: three years, three months, eight days

Just like the past two years, Angie at Still Life with Circles, has encouraged us all to share right where we are at this moment in our grief.  My post from last year can be found here.

So, where do I stand in this up and down journey on this rugged terrain of grief? My grief has changed shape and size in the past three years, as life takes me down more paths that intertwine with this same road that I've trudged along. Right now, I am stuck. That's the only way I know how to describe it. Losing my daughter, Avery, three years ago at 25 weeks caused a ripple affect that has not seemed to cease. It's brought about so many other circumstances that I was never prepared to face, and now, I still face them everyday.

My son, my Rainbow Baby, will be two years old next month. As he gets older, my insatiable desire for more children gets stronger. Because of the unpredictable nature of my high risk pregnancies, I have been strongly advised to never attempt another pregnancy again. This has been a struggle that I still have never been able to accept. Right now, I am watching everyone who was pregnant with their Rainbows along with me become pregnant once again. Their bodies no longer fail them. They've seemed to be able to remedy what caused them to have their losses. But not me. Even those who have the exact blood clotting disorders I do have gone on to have healthy, full term pregnancies, and are having third babies now as well. My premature Rainbow was nearly lost as well, my body barely responding to what was supposed to fix it. All of this leaves me with so much anger. I don't understand why my body was not made for the one thing my heart has always longed for. I am grateful for my precious Jude, but I never wanted him to be alone.

When I had Jude by emergency c-section while on blood thinners, it caused me to develop blood clots in my lungs. I was hospitalized for his last week in the NICU, and it was one of the most traumatic experiences I've ever endured. I thought I would be over it by now, but it still haunts me. I have been left with a ridiculous struggle with anxiety. Because of the clots nearly two years ago, I am on coumadin and have to get my blood checked once a month (PT/INR). My anxiety has turned these routine finger pricks into horrifying moments to dread all month long. As they get closer, I am filled with fear. I know there is nothing to really worry about, but I cannot shake the feeling of dread over it. Things that never would have bothered me before have my stomach in knots now. I worry that I could lose my husband. I worry that my son could get cancer (ever since his febrile seizure seven months ago). I think about things no one should dwell on. I rob my life of the joy I should have by marring it with the fear of what isn't. I truly cannot control this and sometimes it consumes me.

Right now, I long for another daughter. I so badly want to be able to raise a little girl. I eat my heart out at the store, glancing over the sweet pinks and frilliness of the baby girls' section, knowing that the only baby girl clothes I'll ever buy are in a box in the top of my closet, purchased for a sweet girl that never made it home. I long for the little sandals and the dresses. The dolls and the bows. I love having a son, but I want a daughter again too. I was supposed to have that. I feel like there will forever be a gaping hole in my heart without a daughter to watch grow up. I'll never see my little girl as a bride. Never share girly heart to hearts or give mother-daughter advice. There's so much I can't have and I am dreadfully aware of that. I wish I didn't want it so badly, but I do.

I have a hard time with people who question my situation, just shrugging it off like I could just go to a specialist if I want another baby. They don't understand how serious it is. I almost died twice having my son. He almost died. My daughter did die. Since there are no guarantees at all when it comes to pregnancy for me, how could anyone think I should try going against the advice of more than one doctor? Then people nonchalantly suggest adoption, as if I've never heard of it before. That is not something that we can afford. And my heart aches for my child, so adoption does not heal what is broken. My dream is surrogacy, if that is even possible one day. If someone is truly selfless enough to give us the greatest gift imaginable. It's a huge deal. And very unlikely, but even so, I still keep a mental log of my favorite names... just in case.

I am convinced that if what happened to Avery was the end of our losses, that I would be a much better version of myself now. I grasp onto my loss more tightly than I would if we hadn't lost our future children as well. When I was pregnant with Jude, and everything was going perfectly, I felt at peace. I thought of her lovingly, without so much pain attached to her memory. I felt like I could survive and move past it, always carrying her close but never letting her death define me. But as soon as things went badly with Jude, and I lost all of his future siblings, a dark cloud moved in and it's hovered over me ever since. I'm stuck in the mud. I'm standing still while everyone moves on... But at least I'm standing.

Dreams are mean

Last night, I had such a sweet dream. It was very unrealistic, which isn't like my usual dreams. Surprisingly, I tend to have dreams that do a good job of coinciding with my normal life. Once in a while I'll get an odd surprise, but not usually. I never dream that Avery is alive. I only ever once dreamed that she came back to life after she'd been born, but that was years ago, just days after she died.

And last night came a dream that I never have because my mind knows better. It knows it's not possible. Last night, I dreamed I was pregnant with a third child. There was no fear, as if it were just a normal thing for me to get pregnant again. I'm not sure if Avery existed in this impossible universe, but I know Jude did. In the dream, we also quickly found out that this unexpected baby was a boy. There were no thoughts in my mind that he could ever die or that I was in any danger. It all just felt so calm and easy, like I assume most normal women feel when pregnant. I remember being excited to pick out a name. And just like in real life, if we were able to have another son, we chose the name Jonah.

I remember feeling so happy and so delighted over Jonah. I was excited that Jude would be getting a brother and that we would get to raise another baby. But then, inevitably, I woke up and Jonah disappeared. There won't be a Jonah.

And as I brushed my teeth and recalled the dream, I felt angry. I want to accept the fact that I can never be pregnant again, but if my mind is going to betray me (even in my sleep), then this will be so much harder than it already is. I wish so badly the dream could be real, without any possible consequences.

I just wish I could have Jonah.

Flashback : 1.21.11

Today, two years ago (two years already?!), we found out I was pregnant with Jude. I remember it so well, still. Such an amazing and unbelievable day.

It was so difficult, trying again for another baby, when we were supposed to be raising our little girl but weren't. The fear mixed with the excitement mixed with the frustration. Not only was I trying for something I was supposed to already have, it was taking longer than it should. For couple who struggle with infertility, I know nine cycles is a dream. But for me, who is supposedly "normal" is that department, it was just another nagging thing. I can't imagine being one of those women who get pregnant on the first try... or even on accident. I can't fathom how that's possible.

So today, two years ago, as soon as I got up that morning, I dragged Daniel into our bathroom and took a test. I wanted to just put myself out of my misery and see that we failed yet another month. I thought it would be easier for the test to tell me than to wait for my body to. We stood there for just seconds, it seemed, as the little hourglass displayed on the digital screen. Suddenly, there was just one beautiful and alarming, glorious and terrifying word: Pregnant. I couldn't believe it. I let out a joyful shriek and threw my arms around Daniel. It was the beginning of a lovely and scary journey that would end in both victory and defeat.

Pregnancy after loss is such a rollercoaster of emotions. In one moment, you can feel both excited and scared. Both confidence and doom. The bliss is gone, but there's still so much joy in carrying life again, in the same exact spot where there was so much loss. I remember I used to think about how strange it was to have Jude dancing around where Avery died. That his heart beat exactly where hers stopped. He is the only person to be in the very place where she lived, and the very place she passed away.

Her death saved his life... Her death is the reason he is even here, just as he is. I never would have gotten pregnant two Januaries ago if Avery had lived. She'd only be 2 1/2 right now if she'd made it to her due date, so I doubt we'd even have another baby by now. Even when we would give Avery a sibling, in this alternate universe where she never died, it wouldn't be the Jude we know now. He would be a completely different person. It's crazy to think of that. I'd never change Jude, but I wish Avery was here.

I'm so grateful how everything turned out with my second pregnancy, despite the new horrors that came with it. Standing in my bathroom with that positive test in my hand, I was not promised that our second baby would make it here alive. There was so much left to uncertainty. So much fear and worry. So much hope and joy. I've never prayed more in my life than I did when I was pregnant with Jude. Most days, I begged God for his life. I thank God He brought Jude here safely, even if it was too early and not the experience I dreamed of. I'm so glad this day in our history is still a happy day, the day we found out our boy was coming.

"Mighty glad you stayed..."

Merry Christmas, Darling

We've been spending a great deal of time lately 'decking the halls' and shopping for gifts. Christmas has always been my favorite time of year but for the last two years, it's been both happy and sad. Both joyous and lacking. I savor all of the warmth the season brings into our home and the excitement that hangs in the air, but another emotion lingers over us always during these festive days.

Avery isn't here.

Her stocking hangs between mine and her brother's. She has several ornaments gracing our tree. But she will never share in this special holiday with us. The closest thing to having her here was when I was pregnant with her for Christmas of 2009. I kept saying excitedly how it was our last Christmas without our baby when actually, it was our only Christmas with her.

As I watch Jude marvel over these new and amazing sights, I wonder how Avery would love it all. What would be her favorite parts of our traditions? What would be on her Christmas wish list? Surely, she would have helped us decorate the tree last night. Even if she dropped and broke a few ornaments, I'd be glad to let her help. To see the twinkling lights illuminate her little face. To watch her smile in awe as she watched the tree come to life with color and beauty. I know she would've enjoyed it. The Christmas cookies we'd bake. The Christmas movies we'd watch. The Christmas dresses she'd wear. I'm sure she would have looked beautiful on our Christmas card, nestled right in between us, next to her brother. And she'd probably help Daddy plug in the Christmas lights outside each evening and light up as the lights did.

Christmas, although beautiful and magical, will always be missing something. I'll always wonder about that empty space in our family and my imagination will always fill it as I drift off into the 'if only's. I especially wish that Jude could share the excitement of Christmas with his sister, just the way I always did with my brothers. It makes me sad for him, though he'll never know differently and won't realize what he's missing. But I will. It'll always be there in the back of my mind. His singularity, his technical only child-ness.

I try not to focus on the negative aspects. I want to enjoy our blessings more than grieve our losses. It's not as raw as it used to be. The first Christmas without Avery was agonizing. It was ugly and anything but joyful. The season's beauty practically mocked our pain. I'm so grateful that our hearts have come a long way since then, but our love has not faded. The way we miss our little girl has not changed. We'll always wish she was here. I guess in a way she is, living on in the spirit of her little brother, who is here because of her.

I often think about where Avery is spending Christmas instead. And I think about what Christmas is all about in the first place... Celebrating the birth of Christ. Avery gets to celebrate the birth of Jesus with Him. She is there with Jesus Himself, among the songs of the angels, sharing in His birthday celebration. What an amazing joyous sight that must be.

Merry Christmas darling, we're apart that's true
But I can dream and in my dreams, I'm Christmas-ing with you...

Capture Your Grief : Day 24 // Siblings

After we lost Avery, I couldn't imagine a day when I'd be okay with offering up my womb to another child. I knew I wanted to have more children one day, but in the depths of my grief, I couldn't fathom emotionally surviving it.

Surprisingly, it was only three months before Daniel and I decided we were ready to try again to make Avery a big sister. It took us nine long cycles to conceive Jude. Each month was another slap in the face. It was easy to worry that Avery would be the only child we could ever have. But finally, on January 21, 2011, we found out Jude was on his way.

It was a beautiful and horrific 31 weeks, but Jude made it. And he came to stay.

I wish Avery and Jude could grow up together, the way that I have grown up with my brothers. Because I had siblings, I always had friends. It makes me so sad to think that it's more probable than not that Jude will grow up alone. Whenever I see a big sister and a little brother together, I can't help but think of my kids and how they are supposed to be together.

We will raise Jude to know who Avery is and to love his big sister as if he knew her himself. She will always be special in our home. She will always be a part of our family. And she will always be Jude's big sister.